About The Author

Donna Pinto

The motivation for this began in 2009 with my own personal experience.

Little did I know how a “suspicious” finding on a mammogram would turn my life upside down at age 44.

MY DCIS JOURNEY

After two barbaric biopsies, I was given a diagnosis called Ductal Carcinoma in Situ (DCIS), commonly known as “stage zero” breast cancer. While it was described as “pre-cancer,” the “standard-of-care treatments” seemed extreme and radical — the same as if I had full blown invasive cancer.

Intuitively I knew something was not right.

I left the doctor’s office in a state of shock, drove home, and immediately got on my computer to investigate.

Over the next few weeks, I spent countless hours searching the internet.

I was overjoyed when I found a handful of experts discussing a controversy about “over-treatment” of DCIS — exactly what my intuition was telling me.

Emboldened by this information, I declined all treatments, and continued to research nonstop. 

What I discovered next blew me away. Doctors were claiming, studies showed at the root of over-treatment was a 30-year epidemic of “over-diagnosis.” My dad argued with me, “Donna, that’s not even a word.”

As I dug deeper into the problem of over-diagnosis, it became clear that discussing this, and other harms of mammography, was a taboo subject.

My initial shock evolved into concern, and at times, outrage.

Why was this information not widely known? And, why were women not being informed by their doctors before starting routine screening mammograms?

Like most women, I thought I was being responsible, and I felt proud going for my first mammogram at age 40.

I did no research and I asked no questions. I trusted my doctor, and all that I heard in the media.

I was naive to any harms. Sadly, I learned the hard way.

That’s why this book is so important.

It serves as a counterbalance to the onslaught of pink ribbon marketing slogans women hear year after year during October’s famous Breast Cancer Awareness Month — “Get Your Mammogram… Early Detection Saves Lives!” 

Looking back, I wish I had a book like this in my 30s. I have learned the value of being informed vs. finding out later, after damage has been done, and there is nothing really that can undo the harm.

For me, sharing information and helping other women understand this complex subject, has been rewarding and healing in itself.

My goal is to empower and support women so they can make well-informed choices when it comes to their health.

No one should ever feel pressured, coerced, intimidated, incentivized, or fear-mongered into a medical test without knowing the potential risks.

Women tell me, it’s not so easy to challenge their doctor, or to ask for a different imaging test, but women have every right to opt out, and/or to seek alternatives that align with their values.

With the comprehensive knowledge, my hope is for you to feel confident in speaking intelligently with your doctor, and to know, if you choose to opt out of mammograms, you have valid reasons, and you are not alone.

Donna Pinto

ACKNOWLEDGEMENTS

DCIS Redfined, Michael Greger, Michael Baum, Peter Gotzsche, Jenn Simmons, Pam Popper, Julie Marron, Patrick Kingsley, Sarah Mybill, Megan S. Smith, Alexandra Barratt, Anne Kearney, Gerd Gigerenzer, Iona Heath, Susan Bewley, Vinay Prasad, Jason Lee, Harminder Singh, James A Dickinson, Guylène Thériault, Roland Grad, Stéphane Groulx, Brenda J Wilson, Olga Szafran, Neil R Bell, Mark Ebell, Jessica Herzstein, PRECISION Consortion, COMET Study Team, Christie Aschwanden, H Gilbert Welch 1, Brittney A Frankel, Renée Pellerin, Gayle Sulik, Anne Stiggelbout, Tessa Copp, Gemma Jacklyn, Jesse Jansen, Gerrit-Jan Liefers, Kirsten McCaffery, Jolyn Hersch, National Breast Cancer Coalition, William C. Black, David Ropeik, John D. Keen, Sudhir Srivastava, Eugene J Koay, Alexander D Borowsky, Angelo M De Marzo, Sharmistha Ghosh, Paul D Wagner, Barnett S Kramer, American Cancer Society, K J Jørgensen, Maryanne Demasi, Laura Esserman, Wiser Healthcare, Mette Kalager, Peggy Orenstein, Philippe Autier, Mathieu Boniola, Victoria Mintsopoulos, Michelle B. Nadler, Peter Sasieni, Barry Kramer, Ilana Richman, Daniel Corcos, John W. Gofman, Susan Wadia-Ells, Asia Friedman, Samuel S. Epstein, Rosalie Bertell and Barbara Seaman, Parth Shah, Imani Thornton, Nancy L. Kopitnik, John E. Hipskind, Lisa Simpson, Shannon Brownlee, Mei-Sing Ong, Kenneth D. Mandl, Archie Bleyer, M G Marmot, D G Altman, D A Cameron, J A Dewar, S G Thompson, M Wilcox, Esther H. Lips, Margot Nieberg, Jelle Wesseling, JoanLunden, Nancy Cappello, Are You Dense?, Tara Ma, Caitlin R Semsarian, Lisa Parker, Nirmala Pathmanathan, Brooke Nickel, Katy J L Bell, Peggy Orenstein, Sara H. Javid, L. Christine Fang, Larissa Korde, Benjamin O. Anderson, Harminder Singh, James A. Dickinson, Guylène Thériault, Roland Grad, Stéphane Groulx, Brenda J. Wilson, Olga Szafran and Neil R. Bell, Philippe Autiera, Mathieu Boniola, Ronnie Cohen, Sobral-Leite, M., Castillo, S.P., Vonk, S. et al, Jasmine Just, van Seijen, M., Lips, E.H., Thompson, A.M. et al, Ilana Richman, bOObs: The War On Women’s Breasts, thePromiseFilm, Happygram, NutritionFacts.org

Help us spread awareness.

“With comprehensive knowledge, my hope is for you to feel confident in speaking intelligently with your doctor, and to know, if you choose to opt out of mammograms, you have valid reasons, and you are not alone.” -Donna Pinto

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